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Hugh THomas raised £5,109.79 from 161 supporters
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Closed 31/10/2016
Weʼve raised £5,109 to give an inspirational little girl the opportunity of a lifetime, to get her dolphin therapy, something she will benefit from so much.
- Funded on Monday, 31st October 2016
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Story
A team of friends and parents of an inspirational, tough little girl are undertaking Tough Mudder, a 13 mile muddy (very muddy!) obstacle course on September 11th 2016 to raise funds.
Lola was born with a rare chromosome disorder, 9q34.3 deletion syndrome or as it is now called Kleefstra syndrome, more information is available at http://kleefstrasyndrome.org
When Lola was diagnosed at 13 months she was only the 20th in the world, now there are known to be around only 350 cases.
This affects her in many ways, she was born with a heart defect and has severe stomach issues both of which have resulted in numerous major surgeries. Lola has physical and mental disabilities affecting all aspects of her life; she cannot walk, talk, feed, understand the world around her or communicate.
Despite all that she has been through Lola is a very beautiful, happy, loving little girl. She is soft and gentle and enjoys life, her few favourite things sunshine, water play, music and cuddles !
Her smile is infectious and her little giggles never fail to put a smile on our faces.
People often say how hard it must be, but she is a joy everyday and has taught us to be patient and view the world in a different much better way which we are so grateful for.
This is just the start of our fundraising for Lola with the aim to get her dolphin therapy at an institute, and our way of giving Lola something she will enjoy so much, benefit from and hopefully help improve her development both mobility, learning and overall quality of life.
To see Lola please click this link https://youtu.be/aEnuERlJDzQ
Updates
3
- 8 years ago
Hugh THomas
8 years agoThank you so much to absolutely everyone .. we have raised over £11,500 for Lola with all the fundraising events ! The therapy trip planning has started !!
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- 8 years ago
Hugh THomas
8 years agoWith all the donations on justgiving and offline donations and support we have now well over £3000 to go towards Lola's therapy. This is so fantastic thank you everyone ! Only 4 weeks to go to the Tough Mudder now ..
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- 8 years ago
Hugh THomas
8 years agoWell its been just over a week since the original post and we have already raised over £1500 .. absolutely amazing, thank you all so much for the support.
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Hugh THomas started crowdfunding
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Supporters
161
Sharon Brown
Oct 20, 2016
Dress your best day at Burbage school. Lucas Brown's donation towards Lola's dolphin therapy. Hope she has an amazing experience.
£5.00
Kelly Arnold
Oct 14, 2016
What a brave girl. Fantastic cause, hope it will be an amazing experience for her.
£30.00
Anonymous
Oct 12, 2016
Proceeds raised from our raffle by parents, staff and friends of Rhyme and Reason Nursery x
£374.79
Donna Wilkinson
Oct 9, 2016
£10.00
L PARKER
Oct 6, 2016
Good luck x
£5.00
Anonymous
Oct 5, 2016
£25.00
Christine
Sep 27, 2016
Good luck.
£5.00
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