Hello, Oliver has a rare brain condition called Lissencephaly (which basically means smooth brain). This is a degenerative condition with poor prognosis with many passing before reaching 10 years old.

Oliver is 6 Years old (a tall boy at that) with a development level of a 3-6 month old, is completely non verbal. He cannot sit or stand unless supported, He has very very little use of his limbs or hands/feet. He can roll from his back to his front and back (not a full turn) and has limited head control. He is double incontinent.
Oliver is Gastronomy tube fed due to poor swallow, any oral foods have to be a certain consistency and he can tolerate tiny amounts as he tires easily resulting in him aspirating.
Unfortunatley he suffers with Gastroesophageal reflux disease and has had the surgical procedure Nissan fundolipication to help prevent this (currently has loosened).
He suffers with re occurring chest infections always requiring medical treatment.
Sadly he has uncontrollable epilepsy, currently he seizes 4-5 times every day, his last seizure free day was May 2011, he has suffered with various seizure type but his main ones are Clonic Tonics and Myoclonic's. We have tried many many different medications and combinations. He had a VNS implant in Dec last year but have had issues with the wounds since resulting in it being turned off and the battery being removed (battery being replaced March 18th). So far this year he's had a troublesome year with a new seizure type Gelastic Seizures (laughing seizures), He ended up in PICU in Southampton on a ventilator after being in Status Epilectus. We've had many hospital trips/stays because of his epilepsy. When he's unwell his seizures will increase, they can happen at anytime with no warning signs including through the night.
He needs 24/7 care and supervision in every aspect of his life.

For the full story, please visit: https://www.gofundme.com/Oliver-s_Dream