Our beautiful Georgie Pie was diagnosed with Rett Syndrome in September 2013 and Epilepsy in August 2015.

Over the past few years we have seen persistent devestating deterioration in Georgias abilities and health. Sadly Georgia is now wheelchair bound, non verbal, has no purposeful hand use and is no longer able to eat. Georgia is fed continously via a tube, she suffers terribly from dystonia in which agonising muscle spasms ravage her little body, we are finding it increasingly difficult to control Georgias seizure due to an array of complex and painful medical issues.

We have made the difficult decision to move from our current home in Wrexham, North Wales to Liverpool to allow us to be near to Alder Hey Childrens Hospital where Georgia can receive the specialist medical intervention she so desperately needs.

However, with moving we must return several pieces of vital equipment that have been 'loaned' to Georgia by the NHS. These items include hoisting equipment as lifting Georgia is not only dangerous for our backs but also extremely dangerous to Georgias delicate body, specialised seating that provides Georgia with comfort and security but also helps reduce the effects of scoliosis, promote appropriate positioning which in turn eases pressure on her joints particularly her hips, a bath seat which has to be extremely supportive to give Georgia appropriate support but also to protect her during seizures and a profiling bed which not only keeps her safe at night but incorporates a position that decreases some of the suffering she feels every night due to her agonising reflux.

We are desperate to supply Georgia with these pieces of equipment which are essential to Georgias well being particularly as her health has deteriorated somewhat rapidly.

We are so grateful for all of the help and support we have received over the past few years and would like to thank you all for your continued support.