Mummy loves Essie. Daddy loves Essie. Roman loves Essie. Eva loves Essie.

The only problem is that Essie is not at home where she belongs. Essie is currently in hospital on oxygen, feeding from a nasal feeding tube and has problems regulating her temperature.

We want Essie home but our beautiful baby girl has a life limiting brain injury caused from a difficult birth as she is a triplet (and had Twin to Twin Transfusion at birth with all her good blood flowing into her sister, Eva).

Despite asking for help (and we are not the type of people to ask for help), we have been told that we will not receive any support to have Essie at home. This isn't an option for us as we have two other premature babies to look after and fear that our family will be split as one parent will always be watching Essie to check she's breathing, hasn't choked on her feed, hasn't got too hot or too cold.

Then there's the issue of how do we leave the house with a portable oxygen tank that isn't portable.

We would love to have Essie home and it is all we wish for. But we want memories; not to feel exhausted and isolated.

Having private care at home for Essie would be the most amazing thing.

Please help us get Essie home where she belongs.

#mummylovesessie