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Sarah Taylor raised £5,220 from 54 supporters
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Closed 28/05/2017
Weʼve raised £5,220 to fund Ellie's eye gaze machine.
- Funded on Sunday, 28th May 2017
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Story
Martin Merrick and Derek Henderson are running the Gothenburg Marathon on 20th May to raise money for Ellie's eye gaze machine.
Ellie is a little girl aged 4 who has Rett syndrome and is unable to communicate through speech.
A team of family and friends are taking on different challenges to help give Ellie her voice.
What is Rett Syndrome?
Rett syndrome affects 1 in every 10,000 girls.
Rett is a neurological or brain disorder, which often affects apparently healthy little girls around the age of 6-18 months. Girls experience loss of speech and hand use. They may even go on to loose their mobility and develop more severe health problems.
In Ellie's case, she only has around 5-6 words that she can say. She can still use her hands to eat at the moment, however she can't draw, use cutlery or play games that require hand movement.
Ellie struggles daily to communicate and although parents have worked out her unique way of communicating for most things, she struggles daily with not being able to tell everyone else. Eye gaze helps her say what she wants to say and that's why we want to raise enough money to give her that voice!
Raising £12000 will allow Ellie her very own Eyegaze computer allowing her to be free and be the little girl she craves to be without frustration.
Please help gives Ellie the freedom she deserves.
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Supporters
54
Scott McEwan
May 23, 2017
All the best Derek and Martin for a great Cause!
£20.00
Steve & Maureen Ryan
May 22, 2017
Great cause, Sarah.
£60.00
Christine Mann
May 17, 2017
Good luck Martin and Derek. A fantastic gesture for a wonderful family. 👏🏻👏🏻👏🏻 Christine & Dougie x
£20.00
Viv Clement
May 11, 2017
Hi MartinGood luck to you, Derek and Gosta. Guess you are also looking forward to that first alcoholic drink too. Love Viv.
£20.00
kelly lynch
May 10, 2017
Good luck Uncle Martin fantastic thing your doing, gives me inspiration to do one next year , Kelly-Ann x
£10.00
liz hamilton
May 10, 2017
Great cause go Martin & Derek. 😍 Gary & Liz. Xx
£20.00
Lesley Cowan
May 10, 2017
£30.00
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